According to Christian News Network:
A couple in Oregon has announced that they are planning on following their five-year-old daughter’s wishes not to return to the hospital when she becomes sick again, opting for “heaven over the hospital.”
Julianna Snow was diagnosed with Charcot-Marie-Tooth disease (CMT) at the age of two after numerous visits to the doctor in an effort to understand her developmental problems and weakness in her arms and legs.
Her mother, Michelle, a neurologist, soon found that her husband, Steve, had CMT in a mild form and realized that their daughter might have genetically inherited the ailment. Snow underwent treatments and physical therapy to fight the CMT, but struggled with weakened lung muscles that made it hard to breathe and also experienced difficulty swallowing.